I went to Duke again yesterday. This time I saw my surgeon who put in my SCS. Unfortunately, he has no idea why it is not working. It is causing pain instead of therapy. The
Advanced Bionics technicians seem not to understand either. They have done all the mechanical tests they can and don't see any problems. The doctor said the leads have not moved after seeing my two fluoros.
So what to do...
- Reprogram the system on October 31, 2005.
- If that doesn't work, I have to decide if I want to have surgery again to revise the system.
I don't want to have surgery again, but I think the SCS is worth it. Plus, I won't have to have my IPG implanted, it's already there. Therefore, a new surgery might not be as involved as the first.
The other option is to have the SCS removed and forget the whole thing. I really don't want to do that yet though.
Right now, it's wait and see.
I have now performed at Chrysler Hall. Yes. I have played three piano pieces there for a 1,000 people. Okay...okay. I recorded three piano pieces and they were played over the sound system.
They were on a DVD that my dad put together for his work's Day of Caring. I think this is going on 5 years that I've written music for the Day of Caring, but this is the first time I have actually performed for it. Before this year, the music was always desktop recordings.